Blog

Follow along our journey.
Jul 15, 2025
Lunapark families meet for the first time ever!
May 23, 2025
Breaking news: Second US Lunapark patient diagnosed
Aug 30, 2023
Field Trip Time!
Apr 30, 2023
Ultragenyx Rare Entrepeneur Bootcamp!
Mar 6, 2023
DC Rare Disease Week
Jan 23, 2023
It’s happening!
Support our research
We’re funding a project at UTSW to develop a gene therapy for LNPK. Gene therapy is a multi-year effort that will cost over $3M to get to clinical trial. Every dollar helps and we are grateful for your support.
DonateLearn More